Here we are heading into the middle of August with progressively bad news. I look forward to the post where I can boast something in this WAR is going in our direction and Melanoma has not won. What cancer has not taken from me. My SPIRIT & LOVE of coaching! My LOVE for my wife and friends! My FOCUS on making the MOST out of everyday even when I hurt. The entire PROJECT KINDNESS idea.
4 WEEK COUNTDOWN: Tomorrow. (8/19) I go for my 3rd MK3475 (Anti-PD1 trial) infusion at Mayo. This is truly my last hope and possibly the last infusion I will take if my body doesn't start to respond. Doctors tell me it take 10 weeks for MK to start to have an effect IF it will. I am currently at 6 weeks since first infusion. 4 weeks to hang on! I can do it.
TUMOR PROGRESSION has been unbelievable! I had a scan done this past week to verify IF the radiation was working and track tumor progression. We discovered that the radiation WAS working on 2 major spots BUT all the other tumors has considerable growth and there were MORE. MORE? Could we not just have stable or no new growth? I was decent at CrossFit, but MAN I AM GOOD AT GROWING TUMORS!
MY LEG: As you know I have been limping on my right leg. We discovered through MRI that it is bone cancer of some sort and will need radiation at minimum. I meet with my Dr today for course of treatment.
VISITORS: What a great week after launching Project Kindness & Free Hugs this past week. I had multiple offers to meet friends, family and new people I had never spoken to before but they were compelled to meet me. Thank you for coming all the way from Texas, California, Flagstaff, Tucson, Minnesota and Montana! LOVE YOU GUYS!
|Randy, Scott (Texas) & Jason|
|Jason & Craig Howard (San Fran)|
|Joel, Jason, Erin & Kathy (Flagstaff)|
|Erin, Brian (Texas) & Jason|
|Jason, Erin & Jennifer (Tucson, AZ)|
|Wednesday Night Hump Day Happy Hour (Montana, Minnesota & all over!)|
Raffle Items: Sounds strange but I raffled off some of my possessions this week. A few watches, a snowboard, jump ropes, t-shirts, Games shorts etc, you get the point. My idea was to give away anything my friends would want and allow them to have their voice heard if there was an item they REALLY wanted. Some were very excited and went hope with collectors gear. LOL. Made me laugh but I love you for wanting it.
"PROJECT KINDNESS" BRACELETES: I wanted something that said "Thank you". I wanted to give a piece of me that would live on. Something tangible. Something industrial. Be Better...TODAY Bracelet's were born. I gave these out to my close friends on Wednesday night and hope to have more done ASAP.
These are each hand built by a designer I contracted on the east coast. She is working hard to get these done. I have had a TON of requests to purchase them and your wish is almost done also. We have a web site to launch where you will be able to purchase bracelets and t-shirts ASAP. THANK YOU for the tremendous support.
Thank you so much for reading.
Jason & Erin Fine